SFU
    S.13-75
    office of ti ii-: yici:-pri-:sidi-:nt, academic and provc >st
    University Drive, Burnaby, BC
    'I'm.:778.782.3925
    vpacad@sfo.ca
    Canada V5A 1S6
    IAX: 778.782.5876
    www.sru.ca/vpacademic
    MEMORANDUM
    attention
    Senate
    date
    April 29,2013
    from
    Gordon Myers, Acting, Vice-President,
    pages
    1/1
    Academic and Provost, and Chair, SCUP
    RE:
    Establishment of the Chronic Pain Research Institute (SCUP 13-24)
    At its April 17, 2013 meeting, SCUP reviewed and approved the proposal for establishment of the
    Chronic Pain Research Institute for a five year term.
    Motion:
    That Senate approve the proposal for the establishment of the Chronic Pain Research Institute as an
    Institute for a five year term.
    encl.
    c: D. Gromala
    SIMON ERASER UNIVERSITY
    engaging the world

    SFU
    OFFICE OF THE VICE-PRESIDENT, RESEARCH
    Strand Hall 3195
    8888 University Drive, Burnaby, BC
    Canada V5A 1S6
    MEMORANDUM
    ATTENTION
    FROM
    RE:
    Susan Rhodes, Secretary
    Senate Committee on University Planning
    (SCUP)
    Norbert H. Hauncrland
    Chronic Pain Research Institute
    TEL 778.782.4152
    FAX 778.782.4860
    DATE
    November 20, 2012
    PAGES
    1/1
    SCUP 13-24
    sfuavpr@sfu.ca
    www.sfu.ca/vprcscarch
    Attached is a proposal from Dr. Diane Gromala, Canada Research Chair, School of Interactive Arts &
    Technology for the establishment of the "Chronic Pain Research Institute".
    I recommend approval as a research Institute according to Policy 40.01. Once approved by SCUP the
    proposal should be sent to Senate and the Board of Governors for information.
    Motion:
    That SCUP approves the "Chronic Pain Research Institute"^ an Institute.
    Dr. rVorb^rc4£atm>e"rTand
    Associate Vice-President, Research
    .^year term.
    Attachment
    C:
    Dr. Diane Gromala, Canada Research Chair, School of Interactive Arts & Technology
    SIMON PRASER UNIVERSITY
    ENGAGING THE WORLD

    CHRONIC PAIN RESEARCH INSTITUTE
    Proposal 29 April 2013
    Chronic Pain Research Institute
    Statement of Purpose
    As a long-term, degenerative syndrome that has come to be recognized as a disease in its own right,
    chronic pain is a complex phenomenon that affects at least 7 million Canadians, by conservative
    estimates. Chronic pain costs society, governments and families more than cancer, heart disease and HIV
    combined. It is a leading reason for doctor, hospital and emergency room visits, and has high rates
    of
    disability.
    Chronic pain must be controlled and managed by attending to the sufferer's biological,psychological and
    social needs. The need for this complexity of care was recognized when chronic pain was first described
    following World War II in a method now termed the biopsychosocial approach. Thus, expertise from a
    number
    of disciplines is needed to address these aspects. To this end, the Chronic Pain Research Institute
    proposed in this document aims to bring togetherresearchers, practitioners, sufferers(CIHR-designated
    "knowledge users") and caregivers in a dynamic environmentthat enables the exploration of multiple
    avenues of research, management and control of chronic pain. These avenues include technology and
    media development to address the psychological, social and biological aspects of chronic pain, as well as
    research methods and practices from evidence-based medicine, as well as methods from the humanistic
    and artistic domains to address the cultural aspects. Training and analyses of clinical practice are
    promising ways that may help create capacity for our health care system that is currently overwhelmed by
    the sheer demand. With our non-profit partners, advocacy will help educate the public and reduce the
    stigma often experienced by those who live with chronic pain.
    To this end, a number of desirable outcomes can be provided by the institute:
    An environment
    for research in chronic pain, including, for example, the development and
    evaluation
    of new technologies for pain research, pain management and pain self-management.
    This can be initially built by deploying SFU SIAT's Pain Research Lab.
    A multidisciplinary community of researchers:
    British Columbia's progressiveand vibrant
    community of researchers, clinicians, patients and advocates is well known by Canadian pain
    researchers. Indeed, the contributions of the prominent pain physicians included in the institute
    have been recognized by BC and Canadian pain organizations. SFU faculty (Gromala, Shaw,
    Bartram, Riecke, Neustaedter) have noted experience with interdisciplinary collaborations and are
    already engaged in research initiatives with pain experts. Their research is supported by the CRC,
    NCE GRAND, CIHR, NSERC, SSHRC and provincial health research grants. The proposed
    institute will build upon this network.
    Expand capacity.
    Currently, chronic pain overtaxes our health care system. Further, multi-
    disciplinary approaches prove difficult to sustain. Yet our vibrant pain experts have already
    identified efficiencies of post-surgical care, funded by the province. By examining in- and
    outpatient needs, as well as ways to mobilize caregivers in allied areas, the capacity for care may
    be expanded in ways that benefit all Canadians.
    Build knowledge-to-action
    for the pain management community - practitioners, patients,
    researchers. Gromala, Shaw, Lau, Negraeff, Squire, Williamson, as well as Nursing researchers at

    CHRONIC PAIN RESEARCH INSTITUTE
    Proposal 29 April 2013
    UBC and patients in PainBC are already engaged in research initiatives that have already
    increased knowledge sharing capacity. The proposed institute will enable sustained research that
    focuses on putting research into action.
    *
    Accelerate transfer of clinical observations to researchers, and researchers to clinicians.
    SFU has capacity for developing and evaluating pain management systems, as well as technical
    expertise that may accelerate the rates
    of research-to-clinical practice, and clinical observations-
    to-researchers. A currently funded research project is serving as an exemplar.
    *
    Create a research and training environment of excellence.
    Gromala's Pain Research Studies
    Lab is accommodating much of our initial work, and will be the home of the institute.
    Developed and built alongside Surrey's new Gerontology Lab, it serves the needsof researchers,
    clinicians and knowledge users, who frequent it for Focus Groups and research meetings.
    *
    Create training opportunities
    for health professionals as well as professionals whose work is
    closely allied with health research, such as health informaticists, health economists and medical
    anthropologists.
    Chronic pain is a disease and complex phenomenon that affects at least 7 million Canadians, by
    conservative estimates. It differs from other chronic conditions such as diabetes because it is difficult to
    diagnose, and because treatment strategies are highly specific for each individual. In addition, less is
    known about why the pain response system becomes dysfunctional. Although a few biomarkers have
    recently been identified, chronic pain is typified by tight couplings among its physical, psychological,
    social and emotional aspects. Research and treatment
    of chronic pain therefore often uses biopsychosocial
    methods. Finally, chronic pain is not a well-recognized disease, resulting in frequent misunderstandings
    that stigmatize its sufferers. One reason for this lack of familiarity may be attributed to confusing this
    newly recognized syndrome with our near-universal experience of acute pain. Acute pain arises from
    injury or illness, and subsides as the patient heals. Chronic pain, in contrast, is defined as pain that
    persists for longer than six months, and beyond the time its putative cause by injury or disease has healed,
    if indeed a cause can be identified. Rather, chronic pain is a systemic dysfunction of the pain response
    system; common sequelae include anxiety, depression, insomnia, decreasing mobility, cognitive
    impairment and social isolation. If not properly managed, chronic pain may become degenerative,
    resulting in turn in disability and earlier rates of morbidity.
    To date, no single treatment has proved effective in the long term. The standard treatment
    of opioid
    pharmaceuticals for chronic pain sufferers has the drawbacks
    of dependence or addiction, which creates a
    medical-legal challenge for sufferers and providers alike. Because of its complexity and varied
    expressions among individuals, a multidisciplinary team of health care professionals is the gold standard
    for pain management, yet this approach has proven difficult and expensive to maintain. The need for
    health professionals who treat patients with chronic pain overwhelms health care capacity. This can be
    observed by the long waiting times (one to four years) and by early drop out rates of pain physicians.
    Governance
    The Institute is constituted as a research Institute at Simon Fraser University under the terms of SFU
    Policy R 40.01. It resides under the direct authority of the Vice President Research and conducts its
    affairs in accordance with all other University policies. The term of the Institute is five years as per SFU
    Policy R 40.01.

    CHRONIC PAIN RESEARCH INSTITUTE
    Proposal 29 April 2013
    The institute is led by a Director who is appointed by the SteeringCommittee. Term of office for the
    Director shall normally be three years. An annual report on the Institute's activities and financial status
    from April 1 to March 31, including the current membership of the Institute and Steering Committee, will
    be submitted to the Vice-President Research by June 30th of each year.
    Committees
    The Institute will have two standing committees to guide the management and establish the direction the
    Institute's work.
    The
    Steering Committee
    will be comprised of members of SFU Faculty, in addition to key stakeholders in
    the research environments of the Institute. The Steering Committee will have at least five members, with
    a majority being continuing research faculty at SFU. The remaining members of the Steering committee will
    be drawn from stakeholder groups such as Surrey Memorial Hospital, Fraser Health Authority, and/or NGOs
    such as PainBC. Steering Committee members are nominated by the Director with annual confirmation
    by the sitting Committeemembers. While it normally operates by consensus, when necessary it can make
    decisions by majority vote, including the appointmentof new members ofthe Steering Committee, as well
    as the appointment and dismissal of the Director and the Deputy Director of the Institute.
    The initial Steering Committee members
    Lyn Bartram, Associate Professor, School of Interactive Arts & Technology, SFU
    Diane Gromala, Professor & Canada Research Chair, School of Interactive Arts & Technology, SFU
    Brenda Lau, MD, Chronic Pain Clinic, Jim Pattison Outpatient Care and Surgery Centre, Surrey
    Memorial Hospital
    Chris Shaw, Associate Professor, School
    of Interactive Arts & Technology, SFU
    Michael Negraeff, MD, Chairman ofthe Board, Pain BC Society; UBC Faculty of Medicine; VGH
    Carman Neustaedter, Assistant Professor, School of Interactive Arts & Technology, SFU
    The work of the Institute is guided by an
    Advisory Board,
    consisting of individuals with a demonstrated
    commitment to the challenges
    of Chronic Pain. Invitations to join the Board are issued by the Director of
    the Institute; members serve for a three-year term, renewable by invitation. The Advisory Board meets at
    least once each year to review the Institute'sactivities and plans and provide advice to the Director and
    Steering Committee. The Advisory Board will advise on direction of the Institute and help broaden the
    interests and awareness ofthe Institute outside of SFU.

    CHRONIC PAIN RESEARCH INSTITUTE
    Proposal 29 April 2013
    Initial proposed advisory board members
    Kellogg Booth
    Prof, UBC, Dept. Computer Science; Scientific Director, NCE GRAND
    Chan Gunn, MD
    Emeritus, UBC Faculty of Medicine, Anesthesiology (BC pioneer in pain mgt.)
    Maria Hudspith
    Executive Director, PainBC
    Anne Townsend
    UBC, Maurice Young Centre
    of Applied Ethics
    Andrew R Webb, MD Clinical Prof. UBC Faculty of Medicine; VP Medicine, Fraser Health Authority
    Andrew Wister*
    SFU, Chair, Department of Gerontology
    Ada Glustein
    CIHR-designated Knowledge User
    Alison Hoens
    CIHR-designated Knowledge User
    The work
    of the Institute is supported by Affiliated Scholars and Affiliated Professionals, who may be
    individuals from the university and external communities, and may include faculty, staff, or students.
    Status as Affiliated Scholar is approved by the Steering Committee based on the recommendation
    of the
    Director.
    The Institute will substantially finance its activities and initiatives by means of external funding. The
    Dean of FCAT has provided seed funding.
    Activities
    The Institute's activities are open to all interested parties, including faculty and students from across SFU
    and UBC, educators, knowledge users and others outside these universities.
    The Institute may sponsor and organize seminars, conferences, workshops or related events dealing with
    chronic pain research, knowledge translation and/or training. The events may be held on their own or in
    collaboration with other institutions.
    The Institute will maintain a website on its activities, and may also publish a range of materials, including
    newsletters, conference proceedings, scholarly works, applied research and publicity materials, in a
    variety of media.
    The Institute seeks to encourage and facilitate research and training in chronic pain research, and to that
    end provides opportunities and support for university faculty and students, professionals, and other
    interested parties. Within the relevant SFU policies and guidelines, the Institute may charge for the
    services it provides.
    Key to the success
    of the initiative is the identification and inclusion of partner organizations and
    corporations in both the government and private sectors. These are organizations interested in expanding
    or building their expertise in chronic pain research, training, knowledge translation and knowledge-to-
    action. The Institute seeks to attract long-term funding for its activities, and will pursue such opportunities
    in collaboration with other organizations and/or corporations.
    Membership
    The Institute will conduct its activities in accordance with University policies. Members ofthe Institute
    will normally be faculty, students, researchers, clinicians and other stakeholders who make substantive

    CHRONIC PAIN RESEARCH INSTITUTE
    Proposal 29 April 2013
    ongoing contributions to one or more
    of the Institute's research, education, service activities, or funding.
    Members are expected to regularly engage in events related to the Institute. The Steering Committee may
    establish various categories
    of membership in order to facilitate participation in and administration of its
    programs.
    Members List
    Faculty
    Ellen Balka
    Ron Baecker
    Lyn Bartram
    Helene Bertrand, M.D.
    Jim Bizzocchi
    Sheelagh Carpendale
    Henry Daniels
    Margaret Dolinsky
    Halil Erhan
    Paula Gardner
    Bernie Garrett
    Diane Gromala
    Brenda Lau, M.D.
    Gillian Lauder, MD
    Linda Li, PhD
    Karon MacLean
    Michael Negreff, M.D.
    Carman Neustetter
    Neal Pearson
    Bernhard Riecke
    Thecla Schiphorst
    Yacov Sharir
    Chris Shaw
    Pamela Squire, M.D.,CCFP
    Louise St. Pierre
    Eleni Stroulia
    Tarnia Taverner
    Owen Williamson, M.D.
    SFU Communications, Health Communications
    UToronto College of Computer Science
    SFU School
    of Interactive Arts & Technology
    UBC Faculty
    of Medicine
    SFU School of Interactive Arts & Technology
    University
    of Calgary, Dept of Computer Science
    SFU School of Contemporary Arts, Dance
    Indiana University, Hope School of Fine Arts
    SFU School of Interactive Arts & Technology
    Ontario College of Art & Design; Founding Director, Viz Health Lab
    UBC School of Nursing
    SFU School of Interactive Arts & Technology
    UBC Surrey Memorial Hospital; Director, JPOCS
    UBC Faculty of Medicine; Children's Hospital (children's pain)
    UBC Faculty of Medicine; Director, Arthritis Centre of Canada
    UBC Dept of Computer Science
    UBC Faculty
    of Medicine & VGH & PainBC Chairman of Board
    SFU School
    of Interactive Arts & Technology
    UBC Faculty of Medicine & Principal, NP Physiotherapy, Penticton
    SFU School of Interactive Arts & Technology
    SFU School
    of Interactive Arts & Technology, Assoc. Director
    University
    ofTexas, School of Fine Arts, Dance
    SFU School
    of Interactive Arts & Technology
    UBC Faculty of Medicine
    Emily Carr, Interaction Design, Health
    University of Alberta, Dept. of Computer Science
    UBC School of Nursing
    UBC Faculty of Medicine & Surrey Memorial Hospital JPOCS
    Postdoctoral Fellows, Graduate students & Undergraduate Researchers
    Amber Choo
    Chao Feng
    Tyler Fox
    Mehdi Karamnejad
    Terry Lavender
    Bryn Ludlow
    SFU M.A. student
    SFU MSc. student
    SFU Ph.D. student
    SFU MSc. student
    SFU Ph.D. student
    University of Toronto Ph.D. student

    CHRONIC PAIN RESEARCH INSTITUTE
    Proposal 29 April 2013
    Jeremy Mamisao
    SFU undergraduate student
    Maryam Mobini
    SFU M.A. student
    Mark Nazemi
    SFU Ph.D. student
    Eylul Ozgun
    SFU M.A. student
    Jay Vidharthi
    SFU MSc. student
    Chao Feng
    SFU MSc. student
    Non-Profit Partners
    Fraser Health Authority
    Surrey Memorial Hospital
    PainBC
    CIHR-designated Knowledge Users
    Ada Glustein
    Certified Leader, UVic Chronic Pain Self-Management Program
    Alison Hoens
    Clinical Professor, UBC Department of Physical Therapy
    Barbara Sefren
    Moderator, People In Pain Network
    Corporate Partners
    Ayogo Health Inc.
    Vancouver
    FirstHand Technologies, Inc.
    Seattle
    Thought Technologies, Ltd.
    Montreal
    Professional Contributors for In-kind Services
    These professionals have a long-term commitment to contributing in-kind services.
    Kirsta Friesen
    Health Researcher & Project Manager, AIM Medical Imaging
    Jana Esser
    Interaction Designer, Fairfax, California
    Abhishek Kumar
    Interaction Designer, Sonos Inc., Santa Barbara, California
    Judy Pryce
    Board Member (Finance) PainBC & AIM Medical Imaging
    Shridhar Reddy
    Interaction Designer, Cisco Systems, San Jose, California
    * All people named in this document have agreed to participate, with the exception ofthose indicated
    with an asterisk. They have been out
    of town or are in the midst of determining their ability to contribute
    based on existing commitments.

    SFU
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    To submit course proposals for review by the Library, forward the following materials to Megan Crouch.
    • course proposal forms
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    Chronic Pain Research Institute
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    IAT 210. 854,856
    IS [845. 855, 865 / HS 845, 855, 865]
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